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Neurofibromatosis Clinic

Neurofibromatosis is a set of complex genetic diseases that can cause a wide range of challenging symptoms, including benign (noncancerous) tumors along your nerves. Other common features include birthmarks, developmental disabilities, headaches, seizures, muscle weakness, skeletal problems such as scoliosis and other neurological symptoms. Cancerous tumors may occur in a few cases.

The Neurofibromatosis Clinic at Vanderbilt-Ingram Cancer Center is the only clinic in Tennessee dedicated to caring for people with this disorder. Our specialists monitor and help manage symptoms in children and adults. We work together with doctors and nurses from different specialties to offer you customized care throughout your life.

Neurofibromatosis: Why Choose Vanderbilt

  • Unique expertise. Our specialists have dedicated their careers to treating patients with neurofibromatosis and similar conditions.  They can offer you effective care that’s right for your needs. Often, patients seek us for a second opinion on their diagnosis or treatment plan.

  • Comprehensive care. We offer a full range of care for people dealing with these illnesses, including NF type 1, NF type 2 and schwannomatosis, and monitor their progress, from childhood through adulthood. We also offer genetic testing and counseling.

  • Access to other specialists. Because we are part of Vanderbilt University Medical Center, we can refer you to a wide range of specialists based on your unique needs. We may refer you to specialists in orthopaedics care, developmental pediatrics, cancer care or surgery.

  • We are a member of the Children’s Tumor Foundation. This nonprofit is a network of clinics that sponsor neurofibromatosis education, patient symposiums and research studies. At Vanderbilt, our patients have access to clinical trials that provide the latest treatments before those therapies are available at other hospitals.

Conditions We Treat

Diagnostic Tests

  • Genetic analysis
  • Physical examination
  • Magnetic resonance imaging (MRI) 

Treatments We Offer

  • Long-term monitoring
  • Genetic counseling
  • Symptom management
  • Clinical trials


Vanderbilt Hereditary Cancer Clinic
1500 21st Ave., S., Suite 2500
Nashville, TN 37212
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