Neurofibromatosis (NF) can cause a wide range of symptoms, including noncancerous tumors along your nerves.
The Vanderbilt Neurofibromatosis Clinic provides treatment and monitoring for the symptoms of neurofibromatosis and schwannomatosis. Whether you have the disorder yourself or you are the parent of a child with NF, you’ve experienced the worry and stress that comes with it. We offer care and support for children and adults with NF throughout their lives, to help them have the best possible quality of life.
Why Choose Neurofibromatosis Care at Vanderbilt
- Clinical trials
As part of an academic medical center, we take part in research to find better treatments for neurofibromatosis and schwannomatosis. You can talk with our doctors about whether there is a clinical trial that is appropriate for you to join.
- Team approach
A wide variety of symptoms can come with NF-1, NF-2 and schwannomatosis. In some cases, symptoms might require specialized care, such as orthopedic treatment, a pediatric developmental assessment, cancer care or surgery. Our neurofibromatosis doctors work closely with Vanderbilt's other specialists to ensure that you’re receiving the best care.
- Recognized care
Our clinic is the only one in Tennessee that’s dedicated to caring for people with neurofibromatosis and schwannomatosis. Also, we are a member of the nonprofit Children’s Tumor Foundation. The foundation is a network of clinics that sponsor neurofibromatosis education, patient symposiums and research studies.
- Skilled clinicians
Successful management of neurofibromatosis requires a deep level of understanding. Our doctors have dedicated their careers to treating patients with neurofibromatosis and similar conditions.
Tests, Treatments and Services
We offer a full range of tests, treatments and services, including:
- Genetic counseling
- Genetic evaluation
- Monitoring, long-term
- Symptom management